Friday, February 6, 2009

Our First Appointment

We could not have been more pleased with our first first endocrinologist appointment. We were there 1/2 an hour early, as instructed, to find parking and to fill out any necessary paperwork. Paperwork??? This was interesting to me, seeing as they had every ounce of information on him from his hospitalization. Anyhow, we check in, and the amount of people in the waiting room is staggering. We had been on the road, so to the bathroom we go. Cameron first, when his name is called. WHAT? We ask her to give us a minute and sat down, only to have her open the door and bring us back.

Cameron lost somewhere between 14-16 pounds when he got sick. He weighed in at 78 pounds in August. Today he is back up to 75.5. Woo-Hoo! I was so happy when I heard this. We were taken to our room, complete with couch. Did I mention these appointments, every 3-4 months, will take 1-3 hours??? The nurse takes his temp, the child has NEVER ran a fever in his ENTIRE life, and he was hospitalized with RSV when he was 6 months old, and checks his blood pressure. She has him prick his finger for a glucose test and tells him to squeeze an extra large drop out. She takes the extra for his A1C blood test. At this point he did the happy dance, realizing he doesn't have to give blood through a vein. LOL In his defense, his veins are still pretty tender from the IV's and everything they pumped into them. The nurse took his 2 meters, home and school, to download their numbers, plus our log book and was off.

No sooner did she leave the room did one of the specialists come in. I recognized her, by her voice, instantly! I have spoken to her every week since Cameron came home. Not even 5 minutes in did the nurse come back in with his A1C number. AMAZING! His number was 7.7, which is FANTASTIC, considering he was 13.5 not even 3 months ago. The ideal number is between 6 and 7, but Cameron is plugging along. We asked our questions and were told Cameron is doing GREAT, like we didn't know this! ;) She checks over his injection sites and fingertips.

Then the cherry on top of the ice cream sundae came...FLEXPEN! Oh yea! Oh yea! It's our birthday! Get our groove on. She brought out of the demo and asked Cameron to show us what he knew. Cameron has a buddy at school who uses the FlexPen, so I knew he had some knowledge. What I didn't know, and neither did the doctor, was that he KNEW exactly what he was doing. As we picked up our mouths from the floor, she said, "Okay Cameron, now let's see if your mom can do it." At this point I began to cry. My amazingly brilliant son, my roll with the punches boy...words can not describe how proud I am of him. I practiced with the pen on the dummy and we were given samples to take home and use TODAY! Double Woo-Hoo!

Finally, the doctor came in. I was still emotional and she asked if I was okay, handing me a tissue. I just explained how proud I am of him. She took checked his injection sites and fingertips. She gave his body a once over, told us what an excellent job we are doing, and she'll see us in 3-4 months! DONE and DONE!

The worst part of the day was in the parking lot when my purse fell into some crap! Purse down! Need to locate and buy a new one SOON! Other than that, Cameron has put weight back on, his A1C number was WAY better than I anticipated, and has graduated to the FlexPen, which has made our life a dream! All in all, I would say we have a MARVELOUS day.

My high may plummet very low on Monday when I begin fighting for authorization for Thursday's Carb Counting class. We'll see.

1 comments:

April said...

YEA!!!!! Those numbers are awesome! His weight and his A1C! I hope your confidense is rising every day. One of these days, it will all be a piece of cake and you will know more than the docs because you know your son better than the docs. I am so happy for all of you. And yea on getting the pen. We love them!